MESSAGES

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20/10/2008 15:55:15 Jules and Iain Russell - Guildford Having met Neil for the first time at the CLIMB conference in Dudley this weekend, we were looking forward to reading about Sophie. What a gorgeous little girl and what courageous parents. Looking forward to meeting her and Annette soon - as parents of a mito child that was supported by CHASE we have a lot in common. You are never on your own. Sophie's story so far has reminded us of some of the tough times and some of the wonderful times we had with Fraser. Despite the medical definations of what are children are, they are ALWAYS beautiful, ALWAYS brave and ALWAYS special. They are worth fighting for. Hang in there :-)

11/10/2008 16:05:22 Alex Robinson - Teignmouth Devon What a beautiful little girl who is truely very special. She is in our prayers daily and we look forward to meeting her - perhaps this will be possible one day. In the meantime lots of love to you all and thank you for the website. Alex Julian Elisha and Joshua xxxx

02/10/2008 13:27:51 Nanny Lynn - Wellingborough, Northants I live a long long way away from my little granddaughter Sophie, because of this I do not see her as much as I would like to. Nobody knows how long we are blessed with having Sophie with us, so I have promised myself to make every day count the best way I can - One of the first things I do each day is visit thesophiestory to catch up on updated news. Living so far away I don't see Sophie's daily progress, but through thesophiestory I am able to see her every day and look back over all her milestones. She is a special little girl whom we all love dearly. Thank you Neil for giving me a way of seeing my little angel every day. Much love and kisses. Nanny Lynn xxxxxxx

30/09/2008 16:21:17 Susie Maiden - Cirencester, Gloucestershire We are finally out of The John Radcliffe with our little Florence. I have popped back to your website and once again gained courage and support from your journey. We did get a diagnosis from the investigations into Florence's mitochondrial dissorder, she has Leighs Disease/syndrome. Which we must wait to see if began from my husbad and I and thus could effect our other two children. having a name for this has given us some comfort, but still no firm prognosis, we have been told any time from days to months, but almost certainly she will not reach her second birthday. Our Son (7) is beside himself, our daughter who is 6 has decided to become a doctor (in the next few weeks!!!) to cure Florence. Florence was baptised in the john radcliffe on September 8th. The poem read at Sophies baptism sums it all up... Thank you for your web site, we are blessed with such special little people, as one fellow parent said "our little angels waiting for their wings"! All the best and snuggles to little Sophie Susie Mother of Florence (2 months younger than Sophie)

25/09/2008 16:52:34 Kayla Flicek - Minnesota I have the web page on facebook and just wanted to let you know that www.UMDF.com has been really good and helpful to our family. I hope that sophie is doing great!

23/09/2008 20:04:29 Becky Beacham - Fleet Dear Sophie First of all, Sophie, thank you for being such a good bridesmaid, you are the best, and looked so cute!! When I met Barney in Florida, I told him all about you, and how you are his biggest fan, and he told me to send you all his love! He is a very good looking dinosaur, and is lovely, and I can now see why you like him so much. I know you missed me singing Daisy Daisy to you whilst I was away, and I know however much mummy and daddy try they just cant hit the notes like I do! Any how I will make sure I come round as much as I can to make up for it!! See you soon! Lots of love Auntie Becky xxx

14/09/2008 19:56:11 Auntie Natalie - Wellingborough Well done Neil on the success of the golf day x Lots of love to wophie and the both of you see u in a couple of weeks Nat steve lily & Hayden xxxxxxx

07/09/2008 19:02:52 Nikki Foote - Camberley hi to all of you, I was lucky enough to meet Sophie just before i left Chase. It has been so lovely to catch up on her progress on this website, its absolutely fantastic and very helpful to parents who may be in a similar situation. You two are an inspiration to all parents and your love for Sophie shines through. She is an incredibly brave and beautiful little girl. I wish you guys all the luck in the world and look forward to seeing more photos and what else Sophie gets up to. Nikki x

04/09/2008 09:58:02 Debby and James Lewis - Guildford Hi Netty and Neil It was really lovely to meet Sophie (at last) at Becca and Tim's wedding. She really is a beautiful, cheeky little girl. It's quite obvious she is full of mischief and fun. It was great to see you all, see you soon. much love Debby, James, Georgia and Harison

01/09/2008 21:53:40 Deb & Amy Cooper - Ash Vale, Surrey Great website! So nice to see Sophie the other day and she looks lovely in her bridesmaid dress :-) Look forward to seeing you all again soon. Big hugs and kisses Deb