MESSAGES

We would love to hear from you, so please let us know your name and where you're from and take the time to write us a short message. Thank you!

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24/09/2011 21:12:04 skarloey - birmingham would you like to join post pals with daisy?

06/08/2011 21:46:20 Gail - Newcastle upon Tyne Sophie - you are a truly amazing girl. An inspiration xx

01/07/2011 05:45:31 Daryl Hayes - Macon, GA I just wanted to let you know that this poem was written by my wife Linda Hayes for our autistic son, Daryl Hayes Jr. Thanks for sharing it.

30/06/2011 04:39:47 Jenna - BC. Canada Hi Sophie My name is Jenna and i came across your site. U are an amazing, courageous, strong and determined fighter. U are a brave warrior, smilen champ, and an inspirational hero. I was born with a rare life threatening disease. www.miraclechamp.webs.com I love it when people sign my geustbook.

15/06/2011 22:43:26 Rachael Dunne - Dagenham, Essex Hello, All my best wishes to your little angle Sophie. I only came across your website by chance coz I was looking for some cocktail balloons fir my hen party and your lovely picture popped up on my iPad. Beautiful. ITs very sad to come to terms when children have illnesses so serious. I lost my niece to nuroblastoma (cancer) in dec 2009 aged 11. You will all be fine and wish you'll the very best for what the future holds. Rachael X

23/05/2011 18:51:27 AUNTIE DORIS - HAMPSHIRE Lovely to read Sophies update, i of course know she is a wonderful child with wonderful parents x

11/04/2011 18:45:57 JUDE FOOTE - BOUNEMOUTH DORSET I FOUND THIS SITE QUITE BY ACCIDENT AND HOW GLAD I AM THAT I DID. WHAT A BEAUTIFUL LITTLE ANGEL SOPHIE IS. I AM SO SAD AND SORRY THAT SHE IS SO POORLY I WILL PRAY FOR YOU ALL TONIGHT AND MAY GOD GIVE YOU STRENGTH TO CONTINUE TO FIGHT THIS ILLNESS. I AM A GRANDMOTHER MYSELF TO LILY WHO IS JUST A MONTH OLD BUT WHO HAS STRIDOR VERY BADLY AND WAITING TO HAVE A TRACH PUT IN. I AM SO WORRIED AND DESPERATE MYSELF AND CANNOT IMAGINE HOW MY SON WHO LIVES IN AUSTRALIA AND HIS WIFE MUST BE GOING THROUGH. I SEND MY BEST LOVE TO YOU GOD BLESS LITTLE SOPHIE NEVER GIVE UP HOPE MIRACLES DO HAPPEN GIVE HER A KISS FOR ME AND TELL HER SHE IS VERY VERY SPECIAL

01/04/2011 05:00:00 Stephanie Roung - St. George, Ontario, CANADA What a beautiful girl Sophie is!I just found you by chance through facebook. I am reading your story and I am in tears because Sophie's story and medical issues are so similar to my daughter, Alexis. Sadly, Alexis passed away last September. She was 5 1/2. She had a trach also. She also had a stridor and stopped wanting to feed when she was an infant. I wish Sophie great stength always. Here is the link to Alexis' site http://www.caringbridge.org/visit/alexisroung

09/03/2011 23:40:11 Hazel - Stoke On Trent Its been lovely hearing about Sophie.i have a grandson with mito you dont get much info on it have had to look most info up ourselves.His name is Ethan he was 3 on new years eve he has chronic lung disease,deaf, muscle weakness,no swallow so always tube fed.He's on monitor when asleep,bypap at night,but he's always so happy and gives us so much joy,like Sophie does yourselves.xx

14/01/2011 14:23:24 Marika - Australia What a truely amazing little girl Sophie is, thank you for sharing her story. I too have a child with a Mitrochondrial Disease (Alpers Disease). I wish Sophie all the best , your an inspiration xx