MESSAGES

We would love to hear from you, so please let us know your name and where you're from and take the time to write us a short message. Thank you!

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08/05/2009 04:32:39 Beth - Wheaton, IL USA I found Sophie's story on face book and thought I would check it out. You did a nice job telling Sophie's story and she is a cutie. My daughter, Abby died March 10 of this year of MELAS. She would have been 9 on April 16. Our stories are similar, although Abby did not progress so quickly and had about 7 years of a pretty normal life, but we eventually did go through all of the same medical stuff you have. We have a website for her, but I am updating since her death. You have done a wonderful job as her parents. Continue to keep the hope. That is what kept us going. Take care and best wishes for Sophie. Beth

07/05/2009 16:56:35 Heidi Nolette - Wisconsin Thanks for sharing your story. I will include Sophie and your family in my prayers. Keep hope!

14/04/2009 20:11:26 Hayley and Kim - Frensham Dear Sophie, Thank you for letting us come to see you today. We had fun playing with all your lovely toys. Hope you did too! Forgot to thanks Mummy for the cup of tea! We will come and see you again when Hayley's home from uni. Lots of love, Hayley and Kim xxxx

10/04/2009 18:21:57 Shelli - Wisconsin, USA Thanks Annette for sharing this page with me. I just LOVE looking at pics of Sophie, you can tell she is happy and well loved. And she does remind me of Madison.

23/03/2009 11:48:59 Uncle Tim & Aunty Becky - Center Parcs, Longleat Hello all, Lovely to see you all last week for netties birthday and well doneNeil for the speech on Saturday night. Have a good week and take care we will see you all soon and look forward to catching up with Sophies wiggles and waves soon Love to all Tim and Becky.

28/01/2009 13:19:23 Mel Bosward - Sydney Australia Your Sophie looks just gorgeous. I have been searching the internet for infrmation as we lost our little boy Kahleh at the end of last year to what we think is a mitochondrial disease, he was 8 months old. You sound like you both have wonderful attitudes and i wish you the most wonderful, beautiful, happy moments with Sophie.

23/01/2009 23:22:27 deepa - crawley i really wish you all the best. i can imagine how much you're all going through as i have a little girl aged 5 who was diagnosed with a brain tumor at age 3 and we are all still struggling but with gods grace.... we are slowly coming up. i loved all her pictures! she's definately gorgeous!! all the best,

21/12/2008 22:27:26 Louise Jones & Co - Aylesbury LOVE the portaites! you all look gorgeous- Yes, even you Neil(!) Sophie is growing so fast. Must be all that love and the Baby Bio you stick her feet in. I love her new wheels; she looks so comfy. I imagine her brain is doing over-time with all the new things she can see. The forum looks great and, to the un-trained eye, very complicated. Well done Neil. Sending you all lots of love from Aylesbury, Louise, Chris & Alexis And BIG Christmas kisses for Sophie X

25/11/2008 21:05:11 Claire Burt - United Kingdom Hi Annette, congratulations on such a successful fundraising event on Sunday. I wanted to say how glad I am to have been a part of it. You and your family are truly doing such wonderful work for your little girl and CHASE.

25/11/2008 17:43:09 kerry - bournemouth what a beautiful baby girl u have , u shud b so proud shes gorgeous all the best with everything xxx