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| 28/04/2011 09:41:55 |
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| Running for Wheels of Experience |
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| Annette's childhood friend Fliss and her friend Jenn are running for Wheels of Experience - please sponsor them! |
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| 01/12/2010 19:58:21 |
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| The Wheels of Experience Pamper Evening |
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| Our first fundraising event for the 'Wheels of Experience' raises £1,173.96! |
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| 13/09/2010 15:47:01 |
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| Sophie's Switch Toys |
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| A great blog on the 'One Switch' site about Sophie and her switch toys |
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| RECENT BLOGS |
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| 31/12/2011 09:27:20 |
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| Wishing everyone a happy and healthy 2012 |
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| We would like to wish everyone a happy and healthy new year |
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| 29/11/2011 21:32:07 |
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| Autumn 2011 - A busy few months! |
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| Sophie is enjoying school, had fun on a special weekend away, met Bob the Builder and has a new cousin! |
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Our Friends - Other Children's Stories from Around the World
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Darcy
Little Darcy passed away at just 4 months old form a form of Mitochondrial Disease called Mitochondrial DNA Depletion Syndrome.
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Fraser
Brave Fraser lost his battle at 2 years old to a form of Mitochondrial Disease called Co-enzyme Q10 deficiency - he is thought to be the only person in the world to have this condition.
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Neve
Neve lost her battle to Alpers Syndrome which is a form of Mitochondrial disease aged just 2 years old.
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Sidney and Freddie
Sidney and Freddie both lived with their family in Kent (UK) and had a form of Mitochondrial Disease called Alpers. Sadly both boys lost their brave fight - Sid in 2004 and Freddie in 2010.
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Jacob
Jacob's family, from the Midlands (UK), lost him in 2005 from an undiagnosed form of Mitochondrial Disease at just 6 weeks of age.
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Madison
Madison Morgan Grantham lived from 7/29/04 - 8/3/06 in Wisconsin (US). Her diagnosis was Alpers Syndrome, a form of Mitochondrial disease
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Freya
Freya is a little girl who is soon to be 1. She lives in Bristol (UK) with her family. Freya has an undiagnosed form of mitochondrial disease.
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