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| 01/08/2010 07:37:19 |
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| Thank you to 'Stitches of Love and Kindness' |
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| A massive thank you to everyone at 'Stiches of Love and Kindness' who helped to make Sophie's beautiful handmade quilt. |
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| Read More >> |
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| 06/04/2010 19:17:04 |
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| Thank you to Jaxson's Blankies for Babes |
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| A special thank you to Jaxson's Blankies for Babes for the special blanket sent to Sophie |
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| 14/12/2009 21:45:16 |
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| The Holly Bush launch new website |
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| The Holly Bush country pub based in Frensham launch their own website. |
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| RECENT BLOGS |
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| 01/09/2010 21:37:57 |
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| Sophie loves her new train set! |
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| Sophie has lots of fun playing with her new switch adapted Thomas the Tank Engine train set |
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| Read Blog >> |
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| 16/08/2010 21:51:39 |
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| Lots of Water Fun and an Energy Crash |
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| Sophie had a great July with lots of tomboy fun. Unfortunately the end of July and early August bought with it an energy crash. |
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| Read Blog >> |
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| View All Blogs >> |
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USEFUL LINKS
Below is a list of links that have helped us during our journey with Sophie.
We have spent a lot of time researching information to help us understand Sophie's illness and also how to deal with the pressures of caring for a complex special needs child. We hope that some of the links below will help other parents like they have helped us.
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| Tracheostomy UK |
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| The Tracheostomy UK Association website has created a central UK source for all details relating to tracheostomy, procedure, care and questions that are often asked. |
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| UK Children on Long Term Ventilation |
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| This site is intended for the benefit of families and health professionals involved in the care of children and adolescents who need long term mechanical ventilation. |
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| United Mitochondrial Disease Network |
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| The UMDF was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Starting as a volunteer organization based in the basement of a home, the UMDF has grown into a nationally recognized, non-profit organization. |
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| WellChild |
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| WellChild helps sick children and their families throughout the UK. For over 30 years they have been dedicated to three key areas that affect children?s health - care, support and research. |
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